Home Again

It’s been nearly 3 weeks—but I am finally feeling like I am HOME again……It has been a crazy travel schedule for me that is for sure. It is back to the old grind … medical appointments, scans and all the fun stuff that goes with mesothelioma treatment. Just days after my wild Belizian adventure, I was getting CT and PET scans … talk about a buzz kill moment … and what we see in the scans is totally unexpected and very disheartening.

Not only has my cancer resisted the current treatments, it has gone bat shit crazy … the PET scan showed growth … basically my left lung is now totally encased in tumor and that in some areas is up to 2 inches in thickness … not what we were expecting to see. This just totally sucks and is very difficult to process. So while I was loving my time in Belize, my cancer was and still is in an out of control sort of spectrum.

So as of now … mid-June, my chemo treatments have stopped (no need to have those toxins put in my body if they are not doing their job), we are looking into cryro-ablation to help with pain management—which has reached an alarming level in its own right and we are also checking out surgery to remove the existing tumor. This is considered a life extending surgery, because as we all know, this bastard of a cancer will not just die with removal of current cancer cells, it will come back, because there is no cure for mesothelioma … like I said before, it just sucks in soooo many ways. There is also the search for the PD-L1 gene in the hopes of doing immunotherapy—which is now considered a possible new treatment angle (instead of the surgery). So, we still have options … though, fewer than we would like and time is definitely not on our side.

So, Randy, the Honey Badger of all Honey Badgers, is on the hunt for the latest and greatest treatments for me, while I am playing the waiting game in the best way possible … and you know I am not a very patient woman….that damn Fluffy doesn’t know when to stop … dammit!! And while a lot of people would lock themselves in a dark room and scream about the injustice of it all, I decided to sand and stain patio furniture and make an outdoor living room at our home, which is lovingly known as Rocknpine …

Randy and I, along with the greatest support of family and friends, will journey forward in this crazy cancer battle and do the best we can in dealing with my out of control life dilemma … your support and understanding means more than you know……so know as we are plugging forward and doing our best to cope … the support from you, all you fabulous peeps—far and wide–moves us forward and that is priceless!!